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Living with Chronic Illnesses

You guys, I had the best weekend. Seriously. My older daughter, S, graduated from college. My sweetheart and I flew down to South Carolina, stayed with parents (which meant I got to see my mommy on Mother's Day), and got to see my kid for several meals as well as getting to see her walk across the stage and receive her (faux) diploma. I got to see my brother and my nieces and nephews, too, including meeting his two older (adopted) children whom I hadn't yet met.

It was all fun and wonderful, though I didn't sleep super well while we were down there (uncomfortable pillow, temperature issues, possibly all that excitement and/or the evening wine). Last night, we flew home and I was so excited to be in my own bed. And then I didn't sleep super well here, either.

For the past several months, I've been feeling pretty well. My rheumatoid arthritis and fibromyalgia haven't been as bad as they have been for the past several years, in part because I added daily Vitamin B supplements (at my doctor's recommendation), and then prednisone twice a day (ditto). I've had some stiff joints and occasional aches & pains here and there, but my energy has been great overall, and I quickly began to take it for granted.

This morning, I woke up later than I have in the past several months, feeling like I had been worked over rather violently. I'm tired, and so very sore. I mean, this really and truly sucks, and on a 1-10 pain scale, it's at least a 7.

And you guys, this is how I have spent the past three to four years of my life. I was so used to the fatigue/pain levels of today's awfulness that today would have been just above a baseline day for me. So I guess what I'm saying is, I'm a little proud of myself for not being a massive whiner at all times, because this really and truly is horrifying, but I'm also committed to see what I can do to get past this, and to not settle for these levels of pain, fatigue, and discomfort for any period of time moving forward.



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( 7 comments — Leave a comment )
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kellyrfineman
May. 9th, 2016 10:32 pm (UTC)
Thanks.

I'm sorry to say this puts our Saturday plans in a somewhat tenuous position, as I have two MUST-DOs this week (step-daughter's graduation on Wednesday and poetry reading on Friday). Will keep you posted!
TS Davis
May. 9th, 2016 11:25 pm (UTC)
*cheering from the sidelines*
Yes, you put the "LIVING" in "living with chronic illness." Your determination not to let it beat you, even as you lie down as necessary, means you're living on your terms. Glad you're trending on an upswing, even with its little dips and dives.
kellyrfineman
May. 10th, 2016 03:29 pm (UTC)
Re: *cheering from the sidelines*
I love this - and you are right about the LIVING part - I refuse to fold up and pack it in. That would truly suck.
robinellen
May. 10th, 2016 01:44 am (UTC)
I guess good and bad news, right? Anyway, I'm thrilled that you've had months of respite. :) But I'm so sorry that today was awful...and I truly hope that this eases up again. (gentle hugs and many good thoughts)
kellyrfineman
May. 10th, 2016 03:31 pm (UTC)
In some ways, I'm really glad it has occurred, since it made me realize how bad I had it for so long, and that my occasional moments of "poor me" were more than justified, given how much pain I deal with. Also, that I need to be more proactive about making sure it doesn't go back to that! (Feeling a little better today, though still sore and achy.)
angeladegroot
May. 20th, 2016 03:53 pm (UTC)
What Tanita said! That's it's not all bad is due to your refusal to be defined by your illness. Rising above it when you can, and taking the time to recoup when you must. It sucks, but you handle it well.
( 7 comments — Leave a comment )

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